{"id":77962,"date":"2026-03-16T16:09:29","date_gmt":"2026-03-16T16:09:29","guid":{"rendered":"https:\/\/sheffieldwire.co.uk\/?p=77962"},"modified":"2026-03-16T16:26:11","modified_gmt":"2026-03-16T16:26:11","slug":"sheffield-screening-of-no-one-rides-alone-platforms-rare-disease","status":"publish","type":"post","link":"https:\/\/sheffieldwire.co.uk\/index.php\/2026\/03\/16\/sheffield-screening-of-no-one-rides-alone-platforms-rare-disease\/","title":{"rendered":"Sheffield screening of “No One Rides Alone” platforms rare disease"},"content":{"rendered":"\n

A veteran with a rare disease was joined by his friends to cycle the 1955 Tour de France route, making a sports documentary to raise money and awareness for his disorder. <\/p>\n\n\n\n

Clive Phillips has Multifocal Motor Neuropathy (MMN)<\/a>, a rare disorder where his immune system attacks his motor nerves. This makes it hard for the nerves to send electrical signals that move the body.<\/p>\n\n\n\n

One of his symptoms included having the hand strength of a healthy 90-year-old, prior to treatment.<\/p>\n\n\n\n

Less than 1 in 100,000 people suffer from MMN and it is often misdiagnosed as Motor Neuron Disease (MND) or other similar conditions. <\/p>\n\n\n\n

Flipping the acronym, Clive is also founder of Making the Most of Now (MMN)<\/a>, a healthcare and patient advocacy for people with rare diseases. He worked in partnership with Silvereye Films to make the film “No One Rides Alone”.<\/a><\/p>\n\n\n\n

The film sets out to prove that someone with MMN can take on such a colossal challenge. <\/p>\n\n\n\n

Clive is joined on the cycle by fellow veterans, Jon Ager, Frank Culvervell, Steve Shirley\u00a0and Dave Walker.<\/p>\n\n\n\n

Along the journey they also had Paralympians Ben Watson and Ilaria Brugnoli cycle alongside the group. <\/p>\n\n\n\n

\"\"
Group cycling Source: Silvereye Films <\/figcaption><\/figure>\n\n\n\n

The film is currently touring in the UK, to begin the fundraising for Inflammatory Neuropathies UK<\/a> and GBS\/ CDIP<\/a>. <\/p>\n\n\n\n

It showcased in Curzon Cinema, Sheffield on Thursday 12 March which fellow cyclist Mr Walker was able to attend.<\/p>\n\n\n\n

Mr Phillips said that the best part of the tour so far has been creating a sense of community especially when ‘having a rare disease can be so isolating’; one screening had three people with MMN present.<\/p>\n\n\n\n

A major theme of the documentary was ‘giving people the pleasure of being able to help you’ this was something Mr Phillips clearly found difficult during the challenge and still after. <\/p>\n\n\n\n

He said: “I don’t want to be the first person going actually, I am struggling. Because naturally you don’t want to slow everybody down, you don’t want to be the weak link. <\/p>\n\n\n\n

And I had to and that\u2019s probably my biggest lesson, that I need to be really honest about where I am at.\u201d<\/p>\n\n\n\n

After the screenings, Q&A sessions were held giving the audience a chance to ask questions both about the rare disease and process of filming the documentary.<\/p>\n\n\n\n

When asked about his initial reaction to Clive asking him to partake in the challenge, Mr Walker, said: “It sounds like an interesting adventure and what a great opportunity to support a mate. <\/p>\n\n\n\n

Clive needed my help, so it wasn\u2019t something I can say no to.\u201d <\/p>\n\n\n\n

\"\"
Clive at Finish Source: Silvereye Films<\/figcaption><\/figure>\n\n\n\n

The UK tour of “No One Rides Alone” comes to an end Wednesday 18 March, before the film begins screening in Australia and New Zealand and then the USA. <\/p>\n\n\n\n

To watch a trailer of the film click here.<\/a> <\/p>\n\n\n\n

<\/p>\n\n\n\n



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