{"id":69124,"date":"2024-12-06T15:09:53","date_gmt":"2024-12-06T15:09:53","guid":{"rendered":"https:\/\/sheffieldwire.co.uk\/?p=69124"},"modified":"2024-12-06T16:30:20","modified_gmt":"2024-12-06T16:30:20","slug":"sight-loss-is-an-isolating-process-a-blind-student-explains-how-a-disability-service-is-letting-her-down","status":"publish","type":"post","link":"https:\/\/sheffieldwire.co.uk\/index.php\/2024\/12\/06\/sight-loss-is-an-isolating-process-a-blind-student-explains-how-a-disability-service-is-letting-her-down\/","title":{"rendered":"\u201cSight loss is an isolating process\u201d: A blind student explains how a disability service is letting her down"},"content":{"rendered":"\n

I was studying English at university when I realised my sight was finally failing. I was only 20 and it was terrifying. <\/p>\n\n\n\n

My life changed dramatically. I went from being a very confident, active, person to being scared of leaving my house. <\/p>\n\n\n\n

I could no longer read books with enlarged text on my kindle, instead I had  to access material for my course audibly.<\/p>\n\n\n\n

I\u2019d known since I was 11-years-old my vision could be impacted. During a routine eye check appointment, an optician explained she was concerned by what she described as \u2018freckles\u2019 on the back of my eye.<\/p>\n\n\n\n

After being referred for various tests at the local eye hospital, I was diagnosed with a genetic, degenerative condition called Retinitis Pigmentosa<\/a> \u2013 which I couldn\u2019t even pronounce, let alone comprehend.<\/p>\n\n\n\n

It was then, I was told that I was losing my vision over time.<\/p>\n\n\n\n

The specialist predicted that I would lose most of my sight by my early twenties.<\/p>\n\n\n\n

This prediction was pretty accurate. I was registered blind during the second year of my undergraduate degree.<\/p>\n\n\n\n

As I quickly discovered, sight loss is an isolating process. <\/p>\n\n\n\n

I desperately needed support from my university but it wasn\u2019t there. I felt completely alone. I was living three hours away from my family, locked down due to covid, and emotionally, I felt stranded. It felt as though no one understood what I was going through, including the professionals who were supposed to be able to help me.<\/p>\n\n\n\n

Everything and everyone I knew was quite literally fading away.<\/p>\n\n\n\n

In hindsight, I don\u2019t know how I got through my degree but I can confidently say it was not due to the support of the university and the disability services.<\/p>\n\n\n\n

But I didn\u2019t give in. I couldn\u2019t. I still had a life to lead. <\/p>\n\n\n\n

I spent two years working in the Sight Loss Sector between my undergraduate and postgraduate study. It made me realise support that should be put in place for any further education.<\/p>\n\n\n\n

I applied for a journalism postgraduate course and saw my Masters degree at the University of Sheffield as a second chance to get the education experience I missed out on in my undergraduate course.<\/p>\n\n\n\n

I also felt very grateful that I was going to university this time with my most trusted companion, my guide dog, Garth.<\/p>\n\n\n\n

However, as I come to the end of my first semester, I am yet to receive any support from Disabled Students’ Allowance<\/a> (DSA) which I applied for in summer. <\/p>\n\n\n\n

This is not the fault of the university, but a centralised external system, which is supposed to help students with disabilities.  <\/p>\n\n\n\n

I\u2019m not alone. This is a common experience for disabled students which highlights the scale and severity of the issue.<\/p>\n\n\n\n

A system designed to aid us in accessing our education is actually causing more stress and frustration.<\/p>\n\n\n\n

Before I started my first degree, people used to try and reassure me by saying \u2018everyone\u2019s in the same boat\u2019, but this is simply untrue.<\/p>\n\n\n\n

I felt as though I was in a raft watching my peers sail away into the stereotypical and over-sold university life.<\/p>\n\n\n\n

It was not just accessing my course that I was concerned about, but living independently in a new city and socialising with new people who wouldn\u2019t have any understanding of my sight loss.<\/p>\n\n\n\n

DSA in principle, is a wonderful service. It is non-means tested and can provide students with essential equipment that will enable them to access their studies.<\/p>\n\n\n\n

In February 2024, the system was reformed, with the aim of making the process easier and quicker by having just two suppliers.<\/p>\n\n\n\n

But the reality is, this is far from the case. The delay has meant that I have not had any assistive software, such as a screen reader, to help me in accessing my course materials and exams. <\/p>\n\n\n\n

I ended up having to teach myself how to use the in-built software on my laptop while starting my course to try and get me through.<\/p>\n\n\n\n

I want to know what the Students\u2019 Loans Company are going to do to amend the issues. They were aware of the problems, so I would like to know how will they continue to try and solve them?<\/p>\n\n\n\n

It seems that no one is talking about this, and so in light of Disability History Month I want to bring attention to the injustice that many disabled students are facing.<\/p>\n","protected":false},"excerpt":{"rendered":"

I was studying English at university when I realised my sight was finally failing. I was only 20 and it was terrifying.  My life changed dramatically. 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