
{"id":46852,"date":"2023-05-12T11:53:09","date_gmt":"2023-05-12T10:53:09","guid":{"rendered":"https:\/\/sheffieldwire.co.uk\/?p=46852"},"modified":"2023-05-12T11:53:12","modified_gmt":"2023-05-12T10:53:12","slug":"i-could-have-died-at-home-young-stroke-survivor-supports-yorkshire-backed-campaign-after-migraine-misdiagnosis","status":"publish","type":"post","link":"https:\/\/sheffieldwire.co.uk\/index.php\/2023\/05\/12\/i-could-have-died-at-home-young-stroke-survivor-supports-yorkshire-backed-campaign-after-migraine-misdiagnosis\/","title":{"rendered":"\u201cI could have died at home\u201d: Young stroke survivor supports Yorkshire-backed campaign after migraine misdiagnosis\u00a0"},"content":{"rendered":"\n<p>A teacher has voiced her support for a health campaign backed by Yorkshire charities after being sent home by doctors despite suffering a \u201clife-threatening\u201d stroke.&nbsp;<\/p>\n\n\n\n<p>In August 2021, Manchester teacher, Lili Vachon, 27, thought her contact lens had slipped after her vision suddenly became blurred.&nbsp;<\/p>\n\n\n\n<p>Despite taking out her contacts, her eyesight didn\u2019t improve and she knew that something was wrong.<\/p>\n\n\n\n<p>Ms Vachon said: \u201cI just remember everything going sideways, I was trying to speak but nothing was making sense. Luckily my housemate was in and she\u2019s a nurse, so I had no choice but to crawl across the corridor to reach her.\u201d<\/p>\n\n\n\n<p>The pair didn\u2019t even consider it was a stroke, so rang 111 and an ambulance was dispatched. But after waiting in A&amp;E for hours and receiving no tests, she was sent home with a migraine.&nbsp;<\/p>\n\n\n\n<p>Ms Vachon, from Lancashire, said: \u201cI could barely speak and my vision wasn\u2019t right, but the doctor just said it was a migraine and sent me on my way.&nbsp;<\/p>\n\n\n\n<p>\u201cLooking back now it was quite a traumatic experience and I can\u2019t believe they sent me home in such an unsafe state.\u201d&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/sheffieldwire.co.uk\/wp-content\/uploads\/2023\/05\/Lili-Vachon1.png\" alt=\"\" class=\"wp-image-46859\" width=\"329\" height=\"439\" \/><figcaption class=\"wp-element-caption\">Lili Vachon was only 26 years old when she had her stroke<\/figcaption><\/figure>\n\n\n\n<p>After her symptoms didn\u2019t improve, Ms Vachon was sent for an MRI scan as an outpatient to determine the cause of her collapse.&nbsp;<\/p>\n\n\n\n<p>It wasn\u2019t until two weeks later that Ms Vachon got her stroke diagnosis via a phone call.&nbsp;<\/p>\n\n\n\n<p>Ms Vachon said: \u201cI was on my own and just broke down in tears when I got the call. I always thought that strokes were rare and only happened to people in their 70s, so it was such a shock.&nbsp;<\/p>\n\n\n\n<p>\u201cI was also really angry just knowing if the clot hadn\u2019t passed, I could have died at home.\u201d<\/p>\n\n\n\n<p>Ms Vachon feels she was also let down after her diagnosis. It took until February 2022 before she had an appointment with a stroke consultant. During that time, she received no help with speech or physiotherapy and the community stroke nurse only phoned her once.<\/p>\n\n\n\n<p>Ms Vachon said: \u201cI told them how badly I was struggling and they said they\u2019d refer me for some counselling, but they never did. One of the community nurses asked me if I could feed and bathe myself, which I could, so they discharged me.&nbsp;<\/p>\n\n\n\n<p>\u201cThe GPs and the consultants spent more time arguing over whose responsibility it was to make the referrals, when I didn\u2019t care who did it, I just wanted some support.\u201d&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/sheffieldwire.co.uk\/wp-content\/uploads\/2023\/05\/image-5-768x1024.png\" alt=\"\" class=\"wp-image-46856\" width=\"272\" height=\"362\" \/><figcaption class=\"wp-element-caption\">The stroke has put Ms Vachon&#8217;s life on hold <\/figcaption><\/figure>\n\n\n\n<p>Ms Vachon has since been diagnosed with <a href=\"https:\/\/differentstrokes.co.uk\/launching-our-teen-young-adult-befriending-service\/\">PFO<\/a>, which is a hole in the heart that hasn\u2019t closed naturally at birth and can make people susceptible to strokes. It is treated with an operation where a device is fitted to close the hole meaning people don\u2019t have to be on blood thinners for the rest of their life.&nbsp;<\/p>\n\n\n\n<p>Usually it\u2019s an easy fix, but for Ms Vachon the operation didn\u2019t go to plan and was abandoned halfway through when they realised the hole in her heart was bigger than initially thought due to a birth defect.&nbsp;<\/p>\n\n\n\n<p>She said: \u201cI was so stressed before the operation, but I kept thinking at least it can be fixed and I can finally get my life back.&nbsp;<\/p>\n\n\n\n<p>\u201cWhen it was stopped, I really struggled to come to terms with it as I knew it meant being put back on that waiting list.\u201d<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/sheffieldwire.co.uk\/wp-content\/uploads\/2023\/05\/image-3-768x1024.png\" alt=\"\" class=\"wp-image-46854\" width=\"322\" height=\"429\" \/><figcaption class=\"wp-element-caption\">The young survivor has praised the work of the charity Different Strokes<\/figcaption><\/figure>\n\n\n\n<p>The waiting list feels never-ending and Ms Vachon expects to be on it for at least three years as her consultant only works one day a month.&nbsp;<\/p>\n\n\n\n<p>The experience itself was difficult for her to deal with, but the waiting has put her life on hold for the foreseeable future, which has made it harder to stay positive.&nbsp;<\/p>\n\n\n\n<p>The teacher at St Agnes school said: \u201cHaving a stroke is awful as a young person. It\u2019s hard to think that people can look at you and think you look fine when in reality you\u2019re struggling with everything from fatigue to cognitive difficulties.&nbsp;<\/p>\n\n\n\n<p>\u201cI went into that operation feeling so positive, but now my life is on pause and so much of my 20s has been wasted. Recovery is a postcode lottery and I can feel so lonely.\u201d&nbsp;<\/p>\n\n\n\n<p>Since her diagnosis, Ms Vachon has received great support from the charity <a href=\"https:\/\/differentstrokes.co.uk\/\">Different Strokes<\/a> where she\u2019s found comfort in speaking to other young people who have similar experiences to her.&nbsp;<\/p>\n\n\n\n<p>She said: \u201cIt\u2019s not just helped me, but it\u2019s helped my mum as well to understand a bit more about my symptoms and find positivity in hearing other people\u2019s stories and knowing you\u2019re not alone.&nbsp;<\/p>\n\n\n\n<p>\u201cThe Facebook group at Different Strokes has been amazing and the community always makes you feel supported. There\u2019s never a question that\u2019s too silly to ask.\u201d<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/sheffieldwire.co.uk\/wp-content\/uploads\/2023\/05\/image-6-768x1024.png\" alt=\"\" class=\"wp-image-46857\" width=\"308\" height=\"411\" \/><figcaption class=\"wp-element-caption\">Ms Vachon believes more awareness and support is needed for young stroke survivors<\/figcaption><\/figure>\n\n\n\n<p>Ms Vachon has also recently backed a campaign supported by Yorkshire charities to raise awareness for neurological conditions.&nbsp;<\/p>\n\n\n\n<p>The <a href=\"https:\/\/www.neural.org.uk\/\">Neurological Alliance<\/a> runs a <a href=\"https:\/\/www.neural.org.uk\/backthe1in6\/\">\u2018Back the 1 in 6 campaign\u2019<\/a> aimed at getting better treatment for those who have experienced conditions from strokes to MS. They are particularly eager to highlight the lack of mental health support offered to those living with such conditions.&nbsp;<\/p>\n\n\n\n<p>The organisation is supported by Yorkshire charities including <a href=\"https:\/\/www.facebook.com\/NeuroKeyTVDNY\/\">Neuro Key<\/a>, who support people in North Yorkshire, and the <a href=\"http:\/\/www.yhano.org.uk\/\">Yorkshire and Humberside Association of Neurological Organisations<\/a> (YHANO), which is a regional network of neurological organisations across Yorkshire providing a forum to share collective experiences.&nbsp;<\/p>\n\n\n\n<p>Service development manager at <a href=\"http:\/\/www.yhano.org.uk\/\">YHANO<\/a>, Sal Hastings, said: \u201cWith 1 in 6 people estimated to have a neurological condition it is vital that these voices are heard, we are much louder together than we are apart.&nbsp;<\/p>\n\n\n\n<p>\u201cWhilst each neurological condition will have differences, there are many similarities people will face. These can include; access to treatments, diagnosis, timely health and social care, equipment and adaptations.&nbsp;<\/p>\n\n\n\n<p>\u201cThese are all areas which impact people with MND but also someone who has MS, Parkinson\u2019s or a Stroke.\u201d<\/p>\n\n\n\n<p>The importance of raising awareness for neurological conditions like strokes across Yorkshire is echoed by <a href=\"https:\/\/www.facebook.com\/NeuroKeyTVDNY\/\">Neuro Key<\/a>, which has volunteers across North Yorkshire on hand to help care for those living with neurological conditions.&nbsp;<\/p>\n\n\n\n<p>Head of operations, Jo Cole, said: \u201cThere are over 320 neurological conditions and on occasions people have more than one. Services are extremely fragmented now and people struggle in rural communities to find out the what, where and how they can have support or access the services they need.&nbsp;<\/p>\n\n\n\n<p>\u201cWe deliver peer support across North Yorkshire to reduce the isolation people can feel when diagnosed and access a friendly face to share their experiences and feel comfortable<\/p>\n\n\n\n<p>in how they are managing as there\u2019s a chronic need for more understanding in public services about how people can manage their lives.\u201d<\/p>\n\n\n\n<p>The <a href=\"https:\/\/www.neural.org.uk\/backthe1in6\/\">1 in 6 campaign<\/a> was based on a survey run from 2021 to 2022, which accounted for 8,500 people\u2019s experiences. The group wants more government action to address the problems people face when diagnosed with a neurological condition like a stroke.&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/sheffieldwire.co.uk\/wp-content\/uploads\/2023\/05\/image-2-768x1024.png\" alt=\"\" class=\"wp-image-46853\" width=\"278\" height=\"370\" \/><figcaption class=\"wp-element-caption\">Ms Vachon supports the 1 in 6 campaign which is backed by Yorkshire charities<\/figcaption><\/figure>\n\n\n\n<p>Ms Vachon said: \u201cAt least 1 in 6 people in the community, including in Sheffield, will have a neurological condition. It\u2019s so important for people to take a joined-up approach to these services so that as many people as possible can get the support they need.&nbsp;<\/p>\n\n\n\n<p>\u201cSo many people are dismissed and despite losing so much of myself, not everyone will be as lucky as I\u2019ve been not to have any physical disabilities. I especially fear for those who can\u2019t advocate for themselves.\u201d&nbsp;<\/p>\n\n\n\n<p>To find out more about Different Strokes visit the website <a href=\"https:\/\/differentstrokes.co.uk\/\">here<\/a><br>Sign the \u2018Back the 1 in 6\u2019 petition <a href=\"https:\/\/www.neural.org.uk\/backthe1in6\/\">here<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A Manchester teacher has voiced her support for a health campaign backed by Yorkshire charities after being sent home by doctors despite suffering a \u201clife-threatening\u201d stroke.\u00a0<\/p>\n","protected":false},"author":98,"featured_media":46860,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[1214],"tags":[427,9,1222],"class_list":["post-46852","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-stroke","tag-greater-manchester","tag-sheffield","tag-stroke"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u201cI could have died at home\u201d: Young stroke survivor supports Yorkshire-backed campaign after migraine misdiagnosis\u00a0 - Sheffield Wire<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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